Privacy Policy

This is the website of ALS San Diego, http://www.alssandiego.org

Our postal address is:
ALS San Diego
2683 Via De La Valle Suite G-404
Del Mar, CA 92014

You can contact us via email at info@alssandiego.org or by phone at (858) 208-0052.

We provide this notice to explain our online information practices. By visiting our site at alssandiego.org, you are accepting the practices described in this privacy notice.

Privacy Policy Statement
ALS San Diego is committed to protecting the privacy of its users and donors. Information gathered by ALS San Diego is used to monitor the effectiveness of our site and respond to your questions and requests. ALS San Diego will never sell or share donor information.

Aggregate Information
When you visit our website, our server automatically logs (records) the domain name and standard anonymous information about the operating system and web browser you are using, as provided by your web browser. This automatically collected information is used for statistical purposes to help us manage our site and better serve the community, but it does not identify you in any way.

Identifiable Information

Here are categories of Personal Information that ALS San Diego collects:

    • Contact Information and Preferences. We may request contact information such as your name, mailing address, telephone number, e-mail address, and your preferences for how you would like to be contacted by us. We may use third-party services to supplement or to ensure accuracy of contact information.

 

    • Demographic Information. We may request limited demographic information such as your gender, race or ethnicity, marital status, geographic location, and/or primary language. We may also use publicly available data or third-party services to supplement this information.

 

    • Donor & Financial Information. If you donate to ALS San Diego or make a retail purchase on alssandiego.org, we will collect payment information such as your credit card number to process your transaction. We may also collect the name of your employer, if you would like to initiate a process for your employer to make a matching donation. We may use a third-party payment service to process your payments. We will retain your credit card information only for as long as necessary to process the transaction. ALS San Diego respects the privacy of its financial supporters. The organization does not rent or exchange its donor list with any other entity. ALS San Diego will never sell or share donor information. This policy pertains to both online and offline donors.

 

    • Virtual Meeting Recordings and Transcripts. If you join an online virtual meeting with ALS San Diego, we may record the meeting or maintain a transcript of any chat for educational and training purposes.

 

    • Patient & Family Information. Patient and family information, including, but not limited to, name, physical address, email address, age, and telephone number, is confidential and will only be shared with ALS San Diego affiliate entities with written permission from a patient or their designee. Under no circumstances, will ALS San Diego provide or sell any of this information to outside entities, except where required by law and then only after providing notice to the patient and/or designee/caretaker. ALS San Diego will, upon request of a patient or their designee/caretaker, serve as an intermediary between patients and outside entities where deemed appropriate. If you wish to access your health data, correct any inaccuracies within these data, restrict the use of your health data, or request to have your stored health data deleted, please email us at: info@alssandiego.org, or mail your request to: ALS San Diego, 2683 Via De La Valle Suite G-404, Del Mar, CA 92014.

 

ALS San Diego may provide to government agencies and outside entities aggregate data on ALS including incidence, prevalence, and number of patients served by the organization.

Data Security Statement
The security of your personal information is very important to us and we are committed to protecting the information we collect. alssandiego.org uses firewalls and has security measures in place at its physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you on our website. This includes the use of Secure Sockets Layer (SSL) for processing contributions securely. SSL is the proven standard for secure web messaging transactions.

Privacy options and access.

Contact Preferences and Restrictions. We respect your privacy and recognize that you may wish to limit the ways in which we contact you and/or share your Personal Information, including for fundraising purposes. You may opt out of receiving certain email communications. However, we will continue to send transaction-related emails regarding our relationship and the services you have requested.

In addition, we offer the following options:

    • Do not contact me by postal mail.

 

    • Do not contact me by telephone.

 

    • Do not contact me by SMS (text) message.

 

    • Do not contact me by email.

 

To inform us of any desired restrictions, please email us at alssandiego.org, or mail your request to: ALS San Diego, 2683 Via De La Valle Suite G-404, Del Mar, CA 92014.

Registrations and Subscriptions. If you register for an ALS San Diego event or sign up for a newsletter or similar subscription, you will receive communications related to that service, regardless of your prior preferences or restrictions. If you no longer wish to receive event emails or other email subscriptions, email us at: info@alssandiego.org, or mail your request to: ALS San Diego, 2683 Via De La Valle Suite G-404, Del Mar, CA 92014.

Mobile Applications (Apps). You can stop the collection of information by Apps by uninstalling the Apps. You may use the standard uninstall processes available as part of your mobile device or network. To discontinue the collection of geolocation data within Apps, you can modify your privacy settings on your mobile device.

Personal Information Changes. If you wish to update or change your Personal Information that we have on file, you can send your request through one of the contact options on our Contact Us page. After submitting a request, ALS San Diego will utilize identity verification methods in order to change or delete account information and/or data.

ALS San Diego reserves the right to change this policy at any time. Our privacy policy will be kept up-to-date and clearly posted on our website.